Welcome to WeeklyWilson.com, where author/film critic Connie (Corcoran) Wilson avoids totally losing her marbles in semi-retirement by writing about film (see the Chicago Film Festival reviews and SXSW), politics and books----her own books and those of other people. You'll also find her diverging frequently to share humorous (or not-so-humorous) anecdotes and concerns. Try it! You'll like it!

Category: Health/Medicine Page 1 of 7

If someone discovers a new cure for cancer, this would be worth mentioning, and you can anticipate those kinds of stories.

“The True Beauty of Being Bitten by a Tick” at Nashville Film Festival

Zoe Chao in The True Beauty of Being Bitten By A Tick

Zoe Chao as Yvonne in “The True Beauty of Being Bitten By A Tick” at the 56th Nashville Film Festival.

I missed “The True Beauty of Being Bitten by a Tick” when it premiered at SXSW. As it turns out, that was probably for the best.  Director Pete Ohs is having much more success with his newest film, “Europcja,” starring Charlie Xcx at TIFF in Toronto, where it has been described as “delightful.”

When “The True Beauty of Being Bitten by a Tick” premiered in Austin (henceforth to be referenced as TTBOBBBAT) it was described by critics as “intriguing but tedious,” “not cohesive” and “creepy.” It was also called a “sunny-yet-claustrophobic” nightmare. Critics remarked on the “intense sense of discomfort” that the contrasting moods of sinister versus serene evoked.

COMPARISONS

TTBOBBBAT reminded a bit  of the 2019 horror film “Midsommar” by Ari Aster (“Hereditary,”  “Eddington”), where there was a  plot involving a young girl similarly grieving a personal loss.She travels to be with others to recover.  In TTBOBBBAT, Yvonne has joined Camille to try to forget about and recover from the loss of her dog Jerry.  “Midsommar” was known for unsettling visuals and psychological tension. We could say the same of TTBOBBBAT.

Another film that we might compare TTBOBBBAT to is “Get Out,” once the veneer of sociability and normal life is peeled away.The difference between those two films (“Get Out” & “Midsommar”) and this 80 minute film, however, would be the  logic  of the story  the film is attempting to tell.

THE SCRIPT

Supposedly the four leads wrote the script, which means credit or blame goes to Zoe Chao (Yvonne), Callie Hernandez (Camille), James Cusati-Moyer (A.J.) and Jeremy O. Harris (Isaac). Audiences prefer  movies that make sense. True, Yorgos Lanthimos and Ari Aster have done well with some outrageous plots, but they may be the exception that proves that rule. I admit that some  scripts have holes wide enough to drive a Mack truck through, but I had issues with the screenplay even before the lead  played her part without ever cracking a smile.

PLOT BY GROUP MEETING

 

In the tick movie, throwing the plot together in a collaborative, spontaneous  group fashion did not  work well. I can believe that sometimes it works, sometimes it doesn’t. It was not the first time this method  has been used by the Director.

Ohs films are known for unsettling visuals and psychological tension. In this one, the farmhouse rural setting is  beautiful, but even more important is the sound. The eerie noises are extremely important in creating a suspenseful mood. Sound designer Danny Madden and Sound mixer John Bowers deserve special mention and kudos for their work. Isabella Summers composed music for the film and flutist James King is credited.Without the eerie and strange sounds that cue whatever action exists in TTBOBBBAT the film would be nearly devoid of momentum.

Zoe Chau as Yvonne

Zoe Chau as Yvonne in “The True Beauty of Being Bitten By A Tick” at the 56th Nashville Film Festival.

PLOT

So, what is the plot?

Yvonne (Zoe Chao)—who initially presents as  hysterical and rarely smiles or appears to be enjoying herself—joins old friend Camille (Callie Hernandez) by invitation in a lovely pastoral countryside setting. She is urged to join Camille after suffering the loss of her dog Jerry and reaching out to Camille for support . She seems consumed  by grief and guilt–almost hysterically so— and, later, by a tick bite she suffers while walking in the woods near the farmhouse setting.

When Yvonne arrives at Camille’s house, there are two gay realtors already in residence, which does not please her. However, nothing really seems to please Yvonne. I can’t remember her smiling. There also was a mysterious ghost-like sighting of a figure in the woods that is never developed, just as the doors opening and closing somewhat mysteriously are thrown in once or twice, but never really pursued.

A.J. (James Cusati-Moyer) and Isaac (Jeremy O. Harris) apparently know Camille as a result of helping her find the house in this bucolic pastoral setting, which causes A.J.,in particular, to wax rhapsodic about the “farm-to-market” advantages of living in the country. A.J. is a bit of a holistic healer and an all-around Master Chef. The dishes he prepares look like road kill. Yvonne initially seems very reluctant to sample one of A.J.’s masterpieces, but, in later scenes, she consumes a plateful with great gusto after initially pronouncing the dish as bad.

That is a complete shift from her earlier opinion of A.J.’s cooking.  Yvonne’s change of heart towards A.J.’s food is similar to Camille’s change of heart from a woman who never wanted children to one who suddenly announces her pregnancy, but never reveals who the father is, despite being asked. The best we can get from Camille is, “The father died as soon as we had conceived.” That odd remark doesn’t  draw the follow-up questions you would expect.

TICK BITE

The trailer for the film tells us that Yvonne should not be concerned about the tick bite because, “Fear controls us.  It ruins us. And that is the true beauty of being bitten by a tick. Because, after that, there’s nothing left to fear.”

 Does that explanation hold water? Is a tick bite the worst thing that can happen to you? Yes, tick bites can become serious, but treating them with antibiotics is effective, if done promptly. When I was a business owner I left my second-in-command in charge of my business to go off for a franchise-required event for a week. I was upset to learn, upon my return after 7 days, that my Number One employee had—without asking me or telling me—designated someone else to take over running the place so that she could fly to Michigan to be at her mother-in-law’s hospital bedside. What was wrong with her mother-in-law? Tick bite. (No, I’m not making this up.)

I immediately began trying to find out the answer to the question, “How serious is a tick bite?” It was apparently serious enough  that my employee risked her position to fly off, (without permission from or prior notification to me), to be at the bedside of her husband’s mother, who recovered quickly.  Was a tick bite really THAT serious? If Lyme disease goes untreated, you can develop serious heart and nervous system problems, including the following:

  • Nerve pain and tingling
  • Drooping on one or both sides of your face
  • Heart failure
  • Memory loss
  • Dementia

The symptoms above are the result of untreated tick bites, which can cause Lyme Disease, a disease called STARI, or Rocky Mountain Spotted Fever. In most cases, the effect of a tick bite is more like that of the flu.  So, why doesn’t Yvonne march out to her car and go see a doctor? Good question. Never asked or answered. Yvonne’s  failure to seek medical treatment is mystifying and—even more mystifying in what passes for a plot—when did being bitten by a tick lead to a 9-month nap?

THEMES

One theme in the film is the over-emphasis on staying healthy (which, given the current status of the CDC seems merited). Does the word “pandemic” not justify a certain amount of care be given to paying attention to one’s health?  One reviewer (Alison Foreman, 3/8/2025, in “IndieWire”) dubbed TTBOBBBAT “a strange self-care thriller.” Another theme that emerged late in the plot: “We’re all part of a cycle. Eventually I’ll die and just feed the worms.  We’re meant to return to the dirt.” The lengthy title was dubbed as “Generally useless as a dramatic question.” The narrative was termed “wobbly.”

Pete Ohs, Director of "The True Beauty of Being Bitten By A Tick"

Pete Ohs, Director of “The True Beauty of Being Bitten By A Tick” at the 56th Nashville Film Festival.

When four people “collaborate” on a plot, the plot can become incomprehensible. “Wobbles” can lead to collapse. However, Director Pete Ohs has been working a long time and has achieved some notable successes, including the recent premiere at TIFF of “Eurupcja,” which was dubbed “delightful.”

Not all of the plots Ohs has developed came off as well as “Eurupcja.” I watched an interview with Ohs and his wife and collaborator Andrea Lauren Sisson where he shared a plan for a different plot, a story about a character wandering a desolate landscape carrying a robot head. Ohs went on to say that the character is attempting to rebuild his robot girlfriend. O….K….

RANDOM OBSERVATIONS

  • Accents I have heard, but not identified:

Callie Hernandez  (Camille), who was in Damien Chazelle’s “La La Land” and Ridley Scott’s “Alien: Covenant” was born in Jacksonville, Florida, but said she considers her home to be Austin, Texas. There were many points in the film where she seemed to be speaking with an  accent, which sounded most similar to an Aussie accent. There were so many times that her accent came through that I set about trying to find out where she grew up to find out what accent I was hearing. For instance, the two words “Not yet” came off as “Not yit” (when transcribed phonetically.)  When Camille asks “What’s the matter?” she again seems to have an accent. Since this was a bit of the improvised dialogue the quartet created, it might be  time to give the rest of that dialogue exchange with Yvonne.

Dialogue example:

Camille:  “What’s the matter?” (weird pronunciation)

Yvonne: “I can’t stop thinking about dying.”

Camille: “Everything’s OK.”

  • Biodynamic enzymes & mugwart?

There was also  talk of “biodynamic enzymes” right after this exchange. That made almost as much sense as A.J. chiming in that he was going to “burn some mugwort” (used in witchcraft, I have learned, and potentially a sleep aid).

  • Strangely choreographed scene:  The discussion above was followed by a strangely choreographed scene where the others tell Yvonne that she is going to experience a wonderfully “restorative sleep” while they are performing a little syncopated hand jive.  Nine months of  “restorative sleep?” Nine months later, Yvonne awakens and dresses up in a nice outfit, including donning Camille’s pearl earrings. And she learns that everybody is pregnant (except Yvonne.) Right. This seems reasonable.
  • The Title Design was almost impossible to read. Pick something different.

 

I have to admit that the review I read during SXSW where someone described the plot as “hanging on like a confused parasite” kept me from attending. From the reviews of Pete Ohs’ latest film “Eurupcjas”, which are quite good, it’s safe to say that everyone doing anything creative has some hits and some misses and I’ll hold out for that one described as “delightful” by the majority.

Here’s to many more future hits for Pete Ohs and his collaborators.

CAST

Director:  Pete Ohs (Also Cinematographer/Editor)

Zoe Chao – Yvonne

Callie Hernandez – Camille

James Cusati-Moyer – A.J.

Jeremy O Harris – Isaac

Julian Sanchez – Tristan

Jack Ferver – Jude

Maia Novi – Julia

Jack Mikesell – Stephen

Stella Schnabel – Alice

Emily Deforest – Emma

Ben Brewer – Luke

Danny Madden – Sound Design

Sound Mix – John Bowers

Composer – Isabella Summers

Flutist – James King

Jessie Reed – Title Design

 

 

 

 

 

 

“Matter of Time” Documentary at 56th Nashville Film Festival Features Eddie Vedder

 

Eddie Vedder in "Matter of Time"

Eddie Vedder performing in “Matter of Time” from Director Matt Finlin’s documentary, winner of the Jury Award for a Music Documentary, at the 56th Nashville Film Festival. (Photo by Tim Durkan).

In 2014, musician Eddie Vedder and Jill  Vedder co-founded the EB Research Partnership ,a non-profit organization dedicated to finding a cure for the genetic skin disorder epidermolysis bullosa.[135] Director Matt Finlin’s one hour and 46 minute documentary follows Eddie Vedder of Pearl Jam fame as he gives a series of fund-raising concerts in Seattle in 2023 to raise money to find a cure for this horrible disease. Sixty million was raised for research that resulted in 140 research projects, over the past eleven years.

This is an absolutely heartbreaking look at a lethal disease.  You might want to have some Kleenex handy if you make it through the 105 minute documentary dry-eyed. Half of the documentary features Vedder singing onstage at Seattle concerts, accompanying himself on acoustic and electric guitar and ukelele. (No Pearl Jam).  I admit to knowing very little about Eddie Vedder going into this film, other than remembering his 3 year feud (1994-1997) with Ticketmaster. I knew that Vedder had composed musical scores for films like “Into the Wild” (2007) and the 1995 soundtrack for “Dead Man Walking.” The  Pearl Jam debut album “Ten” Rolling Stone voted 209th out of the 500 Greatest Albums of All Time was on my radar . The thirteen times platinum sales with the song “Jeremy” coming in at #11 on VHI’s list of the 100 Greatest Songs of the 90s is another testimony to  Vedder’s success.

Eddie Vedder

Eddie Vedder.

I was always aware of the existence of Pearl Jam, but a huge fan I was not. However, after seeing how much good one entertainer has done over a period of more than 10 years, I am a fan. I also admired Vedder’s public stance on pro-choice and other issues and the candidates he supported during past presidential campaigns.

E.B.

Called “The worst disease you’ve never heard of” E.B. is also dubbed the “butterfly disease” because the slightest pressure on the skin of a child with the disease can mean agony. Open wounds can lead to an aggressive form of cancer; the patient often doesn’t have a long life.  Septic shock can set in if the patient gets an infection, so measures must be taken to wrap the victim in gauze  each day for protection. When clinical trials were discussed, one of the oldest patients that could be found to take part was only 27. We get to know another patient who dies at 16, which we  learn near the documentary’s end.

PARENTS SPEAK

What the children and their parents go through is mind-boggling. As Eli’s mother says, “We just want someone to understand what we’re going through on a day-to-day basis.” Another mother says, “It tears you apart as a child and as a family. I would give anything for my child not to have E.B.” Things that we all take for granted are huge hurdles—like taking a bath. It can take 4 to 5 hours (and much gauze) for each mini-mummification application. Playing with Leggos or simply trying to crawl with such sensitive skin are impossibilities.

A young sufferer from E.B. in the award-winning Music Documentary at the 56th Nashville Film Festival “Matter of Time” from Direct

People stare at the children afflicted with E.B. which caused the 8-year-old sister of Eli to make a TikTok video and posters that read “Just say hi.” The social stigma is there. There are children, like Rowan, who say, “I just want the wounds to stop happening and for my life to be like everyone else’s.”

In the midst of all of this suffering (Charlie, who was abandoned at birth, and was “in pain from the moment he was born”) becomes the adopted child of one family after an orphanage initially gave the woman who would become his adoptive mother syringes of morphine and sent the newborn to her, essentially to die. Charlie surprised everyone by having a fighting spirit. He survived and went on to join the family as their much-loved adopted son.

CHILDISH ADVICE

One young sufferer, an accomplished artist, gave this advice:  “Live each moment to the fullest and do not dwell on the things you can’t change.” Later, this artist—who  lost an arm to the disease as the prosthesis did not “take”—says “Live your best life for as long as you possibly can.” It’s no surprise that terms like “resilience” and “fortitude” are used to describe the courageous children and parents who are interviewed onscreen and share their truth.

 REMARKS

Eddie Vedder performing in “Matter of Time,” raising funds for E.B. research. (Photo by Tim Durkan).

As one parent said, “It tears you apart as a child and as a family. It pretty much turned our world upside down.” It is remarkable to learn that at least two sets of parents chose to adopt children with this disease when they had been abandoned by their biological parents and were left alone in an orphanage.

If this sounds like a terribly depressing film, you’re right. But there IS a light at the end of this particular medical tunnel. There is research attempting to “change dread into hope”. Because of celebrities like Eddie Vedder (in the credits, Adam Sandler and Meg Ryan are also noted) E.B. has made  progress.  E.B. is much closer to being cured than 95% of  other such diseases, thanks to fund-raising efforts like Vedder’s. Thanks, also, to Director Matt Finlin and company, who brought this story to public view, winning the Jury Prize for Best Music Documentary at the 56th Nashville Film Festival.

BREAKTHROUGH

The 140 research projects have succeeded in identifying the specific gene that causes the disease and keeps the Collagen VII from doing its job effectively. There are three forms of the disease mentioned—EB Simplex, Juztional EB and Recessive dystrophic EB. The science is relatively straightforward. For some forms of the disease, there now is a treatment that involves injections of a live virus that goes into the skin cells and clips out the faulty gene, replacing it with a healthy one. It is stressed that this is a treatment, not a cure,–and that it only works on certain forms of the disease–but, as Jill  Vedder (Eddie’s wife) and various researchers in the field tell us, “A decade ago, it was hard to imagine a cure. We are on the edge of a cure for E.B. We can now manipulate cells in a petri dish and we have a viral-based gene therapy.” Hence the title: “Matter of Time.”

Director Matt Finlin of DoorKnockerMedia accepting the Jury Award for Best Music Documentary at the 56th Nashville Film Festival on September 21st, 2025.

At the end of this informative and emotional documentary, this message appears onscreen:

“For millions living with rare diseases, time is not a luxury; it’s a race against bureaucracy, funding gaps and government priorities.  It’s up to us to accelerate science and ensure that life-changing treatments reach the people who need them most.”

Among the diseases mentioned are Cystic Fibrosis, Muscular Dystrophy, Alzheimer’s, Parkinson’s Disease, and ALS . With the current administration in power, the funding for research looks exceedingly bleak. Here is an NPR report that tells just how deep the Trump cuts are: Trump administration makes deep cuts to science funding : NPR

It is important to know the facts about whether or not your government is supporting the research to help vanquish diseases like E.B. Even more relevant, will the current CDC support vaccines to prevent measles, whooping cough, polio, Covid-19, bubonic plague and many other diseases that we all thought were gone forever? Under this administration, those diseases are coming back. The CDC has been co-opted by an unqualified anti-vaccine chief who is taking all of us down with him. I am a cancer survivor. With RFK, Jr. heading up the CDC, I am worrying about even being able to get a vaccine booster shot for Covid-19 before I return to Texas for the winter. I fear for the retirees heading for Florida, which has recently announced a cessation of vaccination programs.  Keep all of this in mind when you next vote. Ask yourself whether the USPO, the FBI, the CDC, the (now demolished) Education Department, the Defense Department are being run in the most effective manner by experts in their fields, or whether we are now fully mired in a kakistocracy. (Kakistocracy: System of Government that is run by the worst, least qualified, or most unscrupulous citizens.)

This is a well-done look at a disease few of us know much (or anything) about. It is skillful in weaving Vedder’s concert footage into touching first-person testimonials to the progress that money for research has made and can make for these brave children and their families. I hope that everyone who goes to this one because they are Eddie Vedder fans gives him great credit for spearheading private efforts like this for over a decade and demonstrating compassion rather than the futile “thoughts and prayers” that we primarily get from the top.

KUDOS 

Award-winning Director Matt Finlin (“Matter of Time”) with Weekly Wilson/ The Movie Blog reviewer Connie Wilson on Sunday, September 21st, at the 56th Nashville Film Festival.

Similar kudos to Director Matt Finlin and Blue Leach cinematography as well as Screenwriter/Producer Karen Barzilay for their hard work and vision in bringing information like this to the public’s attention. In addition to Vedder’s acoustic music, Composer Kevin Drew and Broken Social Scene composed the music, and James Yates edited. All are to be commended for bringing a difficult topic to the screen to add to the awareness of the public and, hopefully, to bring more financial support. All have done a good job with a difficult subject.

CONCLUSION

In 2022 at the 58th Chicago International Film Festival I reviewed Michael Burke’s documentary about ALS sufferer Brian Wallach, “No Ordinary Campaign,”  at its World Premiere. “Matter of Time” reminded me of  “No Ordinary Campaign.” Both were heartbreaking and well-done.

As one young E.B. sufferer articulated, poignantly,  in the film, “I hope more people being kind to other people will come out of this.”

So do I.  A change in leadership at the top  is the first step towards that goal of going forward, not backward, in important health and science research.

Trump As Sociopath: Check the Signs

by Brent Molnar ( Voice of Reason ~ “The Man-Child in Chief: Why Donald Trump’s Behavior Isn’t Just Alarming—It’s Clinical”
Donald J. Trump

Donald J. Trump

“At this point, calling Donald Trump a sociopath feels like stating water is wet. But throw that term around too loosely and people stop hearing it. So let’s be precise.

What if the erratic cruelty, the compulsive lying, the open disdain for rules and empathy—it’s not just some quirky political branding. What if it’s a documented, diagnosable pattern? Because it is. And understanding it might be the first real step toward protecting what’s left of American democracy.
Sociopathy—officially known as Antisocial Personality Disorder (ASPD)—isn’t some cartoonish label you slap on a villain. It’s a well-defined clinical condition. It starts early, often appearing in childhood as conduct disorder—aggression, deceit, a lack of remorse—and fully emerges in adulthood as a complete disregard for others, rules, and basic morality. It’s not about being mean. It’s about being wired to harm without guilt.
Trump’s entire life fits that arc. His father, a distant real estate baron who valued dominance over decency. His mother, emotionally unavailable. A home life that trained him not in compassion, but in conquest. And what we see now—what we’ve always seen—isn’t a break from that past. It’s the fulfillment of it. Trump isn’t unwell because of power. He got power because he was unwell in a way that ruthless systems reward.
Look at the checklist: No remorse for pain caused? Check. Disregard for laws, norms, and human dignity? Check. Chronic lying, even when it gains him nothing? Bullying those beneath him, worshipping those above? All boxes checked. And still, millions confuse his behavior for “strength.” In reality, it’s a toddler in a suit with the nuclear codes and a permanent grudge.
Trump & Putin

Trump & Putin

The tragic twist? Authoritarians and autocrats abroad have figured this out. Trump’s second-term travel itinerary is a map of manipulation. NATO leaders learned: flatter him, and he’ll do whatever you want. Putin knew it. So did MBS. So does Musk. His emotional development stopped sometime before junior high, and it shows. If you coddle the ego, you get the policy.

But let’s not sugarcoat this: Trump’s inner circle is now filled with people just like him. Not sober adults with institutional memory or democratic instincts—but fellow man-babies with vendettas, fragile egos, and no ethical guardrails. And when developmentally stunted men hold real power, they don’t just throw tantrums. They break countries.
We’re already seeing it. Arresting political opponents. Threatening judges. Openly demanding revenge. Surrounding himself with yes-men willing to torch institutions to stay in his good graces. This isn’t just a moral collapse—it’s a psychological time bomb.
So what do we do? First, call it what it is. Trump’s behavior isn’t “eccentric.” It’s pathological. Then we build movements—not just to oppose policies, but to inoculate ourselves against this style of politics. Because this isn’t just about Trump. It’s about a system that rewards antisocial traits and mistakes immaturity for strength.
BEE GONE book cover

BEE GONE book cover

We need voters to stop falling for tough-guy cosplay. We need to educate people about what this kind of psychological profile actually looks like—and why it’s disqualifying, not admirable.

We need to rebuild civic life around empathy, truth, and shared responsibility. And we need to do it fast.”
https://www.weeklywilson.com/unfit-by-director-dan-partland-documents-trumps-mental-health/

Make the Department of Health & Human Services Healthy Again: RFK, Jr. Report Fails

Robert F. Kennedy Jr’s flagship health commission report contains citations to studies that do not exist, according to an investigation by the US publication NOTUS.

The report exposes glaring scientific failures from a health secretary who earlier this week threatened to ban government scientists from publishing in leading medical journals.

The 73-page “Make America Healthy Again” report – which was commissioned by the Trump administration to examine the causes of chronic illness, and which Kennedy promoted as “gold-standard” science backed by more than 500 citations – includes references to seven studies that appear to be entirely invented, and others that the researchers say have been mischaracterized.

Two supposed studies on ADHD medication advertising simply do not exist in the journals where they are claimed to be published. Virginia Commonwealth University confirmed to NOTUS that researcher Robert L. Findling, listed as an author of one paper, never wrote such an article, while another citation leads only to the Kennedy report itself when searched online.

Harold J. Farber, a pediatric specialist supposedly behind research on asthma overprescribing, told NOTUS he never wrote the cited paper and had never worked with the other listed authors.

The US Department of Health and Human Services has not immediately responded to a Guardian request for comment.

The citation failures come as Kennedy, a noted skeptic of vaccines, criticized medical publishing this week, branding top journals The Lancet, New England Journal of Medicine and JAMA as “corrupt” and alleging they were controlled by pharmaceutical companies. He outlined plans for creating government-run journals instead.

Beyond the phantom studies in Kennedy’s report, NOTUS found it systematically misrepresented existing research.

For example, one paper was claimed to show that talking therapy was as effective as psychiatric medication, but the statistician Joanne McKenzie said this was impossible, as “we did not include psychotherapy” in the review.

The sleep researcher Mariana G. Figueiro also said her study was mischaracterized, with the report incorrectly stating it involved children rather than college students, and citing the wrong journal entirely.

The Trump administration asked Kennedy for the report in order to look at chronic illness causes, from pesticides to mobile phone radiation. Kennedy called it a “milestone” that provides an “evidence-based foundation” for sweeping policy changes.

A follow-up “Make Our Children Healthy Again” strategy report is due in August, raising concerns about the scientific credibility underpinning the administration’s health agenda.

The Goodbye Line: Say Hello!

Adam Trunell & Alexis Wood

The Goodbye Line

 

BACK STORY

Many years ago, when I was pondering writing a novel (before I actually wrote four of them) I had a “Eureka!” moment where I thought of what would be the perfect plot device. My nascent novel would feature a pay phone booth. It would follow the different people who used this pay phone booth. It seemed like a good idea at the time, although I never followed through with actually sitting down and thinking up a plot that would involve these fictional protagonists.

That book idea has died a grisly death. So have pay phone booths. A recent statistic  informed me that just ten years ago each state had about 27,000 pay phones. Fast forward to 2025. The California Utilities Commission reported that as of March there are only 2,525 active pay phone units in California. Four hundred and eighty-four of these pay phones were located in Los Angeles County. In Los Angeles there are only 149 remaining pay phones. Out of those 149 pay phones in Los Angeles, only 20 were operative.

Pay phones have given way to cell phones and my novel idea has died with the changing times.  But never fear. A couple of clever artists, Alexis Wood and Adam Trunell, came up with an idea far more creative than my novel idea: the Goodbye Line.

THE GOODBYE LINE

The pair—who are a romantic duo as well as a professional team (Wood is a documentary filmmaker)—have placed stickers on the phones that say, “Yes, this pay phone works” and have invited random individuals to use the phone free and leave a message. Their pitch:  “Some day these will be gone, like me, you, and everyone else.” The message went on to invite passers-by to leave their (free) message “before it’s too late. Saying goodbye is such a part of life. It’s all us coming and going, coming and going. We all share that. And it makes it less lonely, less scary.  Not that it makes it easier.”

Trunell, 46, and Wood, 37, emphasize that the Goodbye Line was not rooted in any sort of personal loss. But the calls have reduced Wood to tears, at times, and left the pair pondering how to intervene if the caller seems to be saying goodbye to  life. One call, coming in from the Hollywood corner of Yucca Avenue and Wilcox Street, read: “Goodbye, Donny.  You were my love from 2017 to a few years ago. But you died last year, and I didn’t know for a long time. It makes me very sad.”

Another caller voiced an emotional goodbye to her mother, who died when he was a teenager, saying, “You thought that I might kind of squander my education,” said the caller, recalling that their last conversation had been an argument about his grades. “I love you, and I miss you, and this has been a long overdue goodbye.” And he hung up.

ALEXIS WOOD & ADAM TRUNELL

The callers have the opportunity to state that they want their words kept private. Otherwise, Trunell and Wood transcribe the conversations and post them on Instagram and social media. Trunell says, “You kind of just walk into this and realize how all this feels. It just sort of happens. The reward is unexpected connections, and reminders of your own humanity.  I’m worried about my folks dying, but I don’t think how it’s going to change me.  This just feels like a very human project.  It takes you out of whatever b.s. is going on.”

One particular phone booth, set along the Chaney Trail, produced calls from people (hikers) saying good-bye to their previously unfit selves and opening the door to their new svelte selves. There are, of course, some drunken calls. And, occasionally, there are disturbing calls, like the one that Wood describes: “It sounded like a kid, and it was a super brief message, and you don’t know if it’s serious or not.”

When asked what caused the two to start the Goodbye Line, Trunell said, “Initially, I wanted to hear people’s voices. I wanted a place where we would get to hear people saying things.”

A PERSONAL APPEAL

Cell phone

Call me. (Isn’t that a song?)

Me, too.

I recently wrote to my best friend (whom I had called, but not reached) and declared, “I NEED A PHONE FRIEND.” I grew up in the era of land lines. I like nothing better than a discussion about current events, politics, movies, or, really, anything. In today’s society (as a former phone friend informed me) all the ‘cool kids’ text. You are considered an oddity, a fossil, a freak if you’d like to actually TALK to someone.

And, of course, I don’t mean sharing health hurdles, but conversation with like-minded individuals who, ideally, share 50% of the duty of carrying the conversation on to a level that we both enjoy. One potential phone friend, my sister, never leaves her house, doesn’t own a car, and currently doesn’t have a driver’s license. She was perfect because she literally never goes anywhere. When you phone others, they are at work, or out shopping, or otherwise engaged (making dinner, reading, watching TV, etc.). Some of them have let me know that they just don’t have the time or inclination to be my “phone friend.” If I didn’t “get” that when it was articulated more than once, some have rattled frying pans or clinked glasses or otherwise let me know that I am bothering them and they are much too busy to be my phone friend.

That is sad, for me. And it is sad for humanity, because, as Adam Trunell said, I, too, wanted to hear people’s voices and other people’s opinions—probably why I went into journalism in the first place in 1963.

If you would like to be my “phone friend” and have time for a conversation on any topic of your choosing, send me a note (via e-mail) and let’s have at it. (I’m not close enough to California to find a pay phone and make a call and, besides, that would be a one-way encounter, which is not my intention.

My only sibling, I had to cross off my dance card. Perfect in so many ways (see above). But she interrupted repeatedly AND within five seconds.

I  asked, politely, that she let me finish one short sentence. One of our first cousins had just died, unexpectedly.  I had called to share this news.  Despite asking  politely that she not interrupt for five seconds to let me get that message out, it didn’t help. She said, instead, “If I don’t say what I’m thinking immediately when I’m thinking it, I won’t remember it later.” O…….K……

I gave up on her as a phone friend, a loss because she is, after all, my only sibling and, secondly, how many people do you know who never leave their house at all? (That would be none, for me). I finally had to point out that phones do work “both ways.” I moved on down the road. We haven’t spoken in months.

So, with the loss of the sole phone friend with plenty of time to talk, I am open to new phone friends, and I want to put that out there for anyone reading this who knows me. How would you reach me? Write me at Einnoc9876@gmail.com and we’ll figure it out.

And let me end this piece on the death of land lines  (which work so much better without recharging) and pay phones with the words of  Todd Martens, who wrote about the Goodbye Line in the Los Angeles Times. It’s a fascinating article and one that ends with this well-written paragraph: “An underlying thesis of the Goodbye Line:  Its existence is a reminder of life’s impermanence.  As much as it encourages us to say goodbye, it’s also a nudge to never stop picking up the phone to say hello.”

 

“Andre Is An Idiot” Sundance Film Promotes Colonoscopies at 45

Andre Is An Idiot film

Andre Ricciardi appears in Andre is an Idiot by Anthony Benna, an official selection of the 2025 Sundance Film Festival.

Andre Ricciardi was an eccentric advertising man who lived an interesting and unusual life. Even one of his daughters (Tallula and Delilah) described her father as “he looks like someone who lives on the street.” In this 88-minute film we learn that Andre has dubbed himself an idiot because he rejected his best friend Lee’s invitation to join him for a colonoscopy when they turned 50 (born in 1968). Roughly one year later. after ignoring some symptoms,  Andre was diagnosed with terminal Stage 4 colon cancer that had spread to his liver.

Andre told his mother, “If I don’t defeat this, you’re right: I’m a fucking idiot.”

DATING HISTORY

Andre had a long history of doing idiotic things. While drinking in a bar with a girlfriend and a friend named Johnny D, Janice, the bartender, tried to get Johnny D. to marry her so she could stay in the country. Janice was Canadian and her green card was expiring. Johnny D was reluctant, but Andre stepped up, in return for a trip to Mexico contingent upon the promise that they would stay married, legally, for two years. Andre shared that “My girlfriend got drunk and spent the night in Golden Gate Park alone.”

Andre then arranged to have the new couple appear on The Newlywed Game Show, figuring that would be good practice for Janice’s INS interview.  Since they didn’t know much about one another, they devised an elaborate scheme to win. This included always picking the nicer answer and, if there were two choices, pick the one with the highest letter of the alphabet. The couple won their episode and, with it, a trip to the Sonesto Beach Resort in Anguilla. The vacation was a success and they remained married until Andre’s death in 2023, which was a 28-year run.

FAMILY

Andre and Janice had two daughters, Tallula and Delilah. Best friend Lee (who looked a bit like Seth Rogen) shared a story about Andre reading “Helter Skelter” aloud to one of the girls when she was hospitalized. Janice and Andre married in 1995 and remained a couple until he died in 2023 at age 55, after being diagnosed at age 52.

ON DEATH & DYING

Andre undergoes 50 rounds of chemo, which he tolerated surprisingly well, something he attributed to a murky and complex relationship with drugs and alcohol. (“Nothing more serious than meth and heroin.”) Andre felt he tolerated chemo so well because of his 35-year relationship with hangovers, although he finally was told, “You’ve gotta’ start taking better care of yourself.”

We see Andre hitting his bong of a morning. When he needs someone to portray his reluctant father, Tommy Chong enters the picture. Andre says, “There is an awkwardness between people and death.” Friend Lee adds that the two “find humor in shitty situations.” Explaining that he anticipates that death will be nothingness, Andre says, “I’m not afraid the way so many people are of dying. I’m afraid for the people I’m leaving behind…Dying is surprisingly boring. This is like a vacation for me. I feel that everything should fall into this ‘I’m dying’ mode and it isn’t and it doesn’t. How mundane my own death is. It’s hard to think of a more serious topic than dying of cancer. I am using a proportionate amount of humor.”

CAUSES of CANCER

Andre offers up a variety of creative ways in which his cancer might have been contracted, including eating salami, ingesting rat poison, and his mother running behind DDT trucks when she was eight.

HUMOROUS SUGGESTIONS

Director Tony Benna of "Andre Is An Idiot"

Anthony Benna, director of Andre is an Idiot, an official selection of the 2025 Sundance Film Festival. Courtesy of Sundance Institute | photo by Traci Griffin Benna.

Andre and Lee embark on a van journey that reminds of “Will and Harper,” the documentary about Will Ferell and his trans-gender best friend Harper Steele. While traveling the country, the pair work on a death yell, as instructed by an online guru. Andre’s is “So long. Suckers.” Lee hollers “Come and get me, Spaceman.” After the two scream, vigorously, into the void of an echoing canyon in the desert, Andre observes, “You might actually die doing this.”

GAME SHOW IDEA:  Peter, Andre’s therapist, listens to Andre’s latest off-the-wall idea of a game show entitled “Who Wants to Kill Me?” This actually isn’t such a unique idea.  I reviewed a movie entitled “The Show,” (2017) directed by Giancarlo Esposito and starring Josh Duhamel, where people are paid to  let others murder them, live, on television. Andre’s therapist, Peter, suggests, “You have the capacity to find the comedic in everything.” Andre is very interested in discussing having his head transplanted onto a healthy body, but he is too sick to make the lengthy journey. Andre’s eyelashes grow amazingly long due to side effects from one of his medications.  He does well tolerating 50 rounds of chemo, but lost 20 pounds on radiation and says, “It was fucking hell.”

MUSIC

Dan Deacon provides some rhymes that amuse, including this verse: “Cancer’s always been depressing. It’s never been pleasant.  It don’t care if you’re a royal. It don’t care if you’re a peasant.” We also hear a song in which the lyric is “Please remember to feed the cat. Please remember that I’m never coming back.”

PSA

Ultimately, Andre wants to encourage others to get life-saving colonoscopies. He  approaches his old agency, Mekanism Ad Agency and Jason Harris, his former boss, to encourage them to mount a PSA campaign that would urge people to get a colonoscopy when they are 45. These PSA billboard ads are still in the works, but the meeting with his former employer is also humorous as Andre is pitched various creative ideas for the ads.

CONCLUSIONS

Andre’s last message, delivered by A.I. is this:  “I sat with fear today.  I didn’t run from it or try to defeat it. Instead, I greeted it like a friend and let it wash over me again and again, terrifying me.  But it was okay.  My fear is insignificant compared to the love around me. I wept for the first time in years.  It was remarkable.  I thought I needed suffering, but, instead, I got bliss.  My heart has never been more open and my fear of death, also tapping at my window, feels a bit more familiar and a little less powerful.”

Also from Andre who is shown near the end stroking Waffles the Cat: “We paint the portraits we want people to see, but the most beautiful portraits are the ones that show the flaws within us.”

A great epitaph for a true original. The Q&A following the film was worthwhile, so here it is:

Q&A:

Q&A with best friend Lee and Director Tony Benna:

Q:  How did you end up doing this film with Andre?

A:  I worked with Andre over the years. Every project Andre ever had was insane. Cancer is not funny, but Andre definitely is. I wanted to get some of his outlandish stories on film.

Lee added:  “We kind of signed in blood to do whatever he wanted us to do.  Andre and I worked together for years. He always talked about making a really funny documentary about something really serious.

Q:  How did you stay out of the way at the house?

A:  Janice opened up her house. She would make muffins for us to take home. We just honored Andre’s wishes. I think that’s what kept him going. At the final point, when he kind of went downhill, it seemed just natural.

Q:  Editing question about how much Andre was involved.

A:  Andre got to see quite a bit of the scenes, including the Death Yell scenes. It was a four-year film project. He didn’t get to see a final cut but he felt it was in good hands.

Q:  What would Andre think about this?

A:  (Lee)  He’d try to sabotage it somehow, saying, “How did we get here?”

Q:  What’s the status of the PSAs?

A:  They’re not out yet, but the idea is to get them out and to spread the word.  From the beginning Andre said, “Let’s try to help people.” He had one idea that involved me getting a colonoscopy live while doing a Q&A, but that didn’t fly.

Q:  What darlings did you have to kill?
A:  We did radiation sessions. The head transplant guy in Italy Andre was really interested in, but he was too sick.  It felt like Andre would have been proud of the edits.  The puppets,. The animation. Something raw and amazing. This film is kind of representative of the kind of work Andre would have done in his life.

Q:  Who did the animation?

A:  (Tony Benna) I did the animation. We had 6 weeks to do 3 minutes of stop-animation. It was very rushed. It was very time comsumng.

See this one, if you can. It was well worth the time.

 

 

 

 

What I Did to Help Kamala Harris Win the Presidency Over DJT

My 2020 twentieth anniversary edition of the Toyota Prius

Gassing up along the way.

Driving to Austin (Texas) from Illinois is always a multi-day trek.

We generally spend one night in St. Louis with family. (Thanks, Mark!)

After that, normally, we take our own sweet time, but my spouse decreed that we would not leave until Saturday (Nov. 2) and that has made all the difference. I don’t know why I meekly accepted that departure date.  I’ll just say it was because I was dumb.

Why dumb?

Because I wanted to make sure to vote for President on November 5th and now we’re registered in Texas. The U.S. cannot afford another 4 years  of Donald J. Trump. It barely withstood the first four horrible years of Covid, climate denial, cronyism, insults and incompetent people in sensitive government posts followed by a January 6th coup in an attempt to seize power when DJT lost the 2020 election. Enough! We are the world’s laughing stock to even think of putting a convicted felon in a post where he travels the world representing us, as a nation, when his Access Hollywood tape displays plenty of reasons why a man accused of (and convicted of) sexual assault is not a fit person to lead the greatest nation on Earth. How can a man who calls our military “chumps” and “losers” be made Commander-in-Chief ? It’s preposterous and unthinkable. Not only that: how can any parent be proud of holding up DJT for their children to emulate— a guy who is a congenital liar and hawks everything from watches to shoes to any other con known to man. (And also rode the Lolita Express to his friend Jeffrey Epstein’s private island on more than one occasion.)

6 books in "The Christmas Cats in Silly Hats" series

The Christmas Cats Fear for the Deer

I wrote 6 books in a series called “The Christmas Cats in Silly Hats” and all of them were about helping others and being good citizens. And then Donald J. Trump—a convicted felon and world class liar and con man—somehow (with Russia’s assistance) became our representative abroad as President of the United States. I’m still in shock over that and just read a very interesting “New Yorker” story about the extent of Russia’s aid to DJT back in 2016, which Attorney General Bill Barr downplayed when it was very real. (I own a copy of the Mueller Report and have read the entire thing, not the Bill Barr Cliff Notes version.)

We had received all kinds of absentee Illinois ballots, in Rock Island County where we previously voted. My question is whether or not we could have voted using the absentee ballots we received (in Illinois) as long as we didn’t “double up?” (i.e., no voting twice.) Since I did not know if we could pick and choose, we went  with the “drive to Texas and vote when we get there” plan, which has revealed itself to have many drawbacks, just as I had feared.

I was in Chicago right up until October 28th (Chicago International Film Festival), so I began packing immediately upon returning to East Moline, Illinois, and was ready to leave after 2 days of packing. I  would have preferred arriving a day or so prior to the vote, just in case anything unexpected happened on the drive down (see photos). I would have liked to have left no later than November 1st. Even more, I wish we had secured absentee ballots, because now I will have to stand in line in Austin, Texas. (*Mind you: I also spent July 25 through September here in sunny Austin; the back-and-forth continues). But I accepted the “November 2” departure pronouncement without a word of protest. That’s on me. I should have known better. As one friend pointed out, I should have voted absentee. But, honestly, this plan to vote in Texas is so new that I did not know how to get an absentee ballot from Texas here. I’ll have to work on that for future elections.

In an attempt to make the Choctaw Indian Casino and Resort in Durant, Oklahoma, to spend the night there on November 3rd, we were caught up in the tornadoes, heavy rain and 70 mph winds that swept through Oklahoma on Sunday. We drove from 10 in the morning until the accident that you see pictured here, which took place around 7 p.m. in Okmulgee, Oklahoma, (which is not close to anything and only has about 11,000 residents.) We had decided to give up on the push to make it to Durant by nightfall, because of the weather, and were stopped at an intersection that had red blinking lights. It had been dark since 4:30 p.m. (thanks to Daylight Savings Time). We stopped at the intersection (U.S. 75 and 6th Street), just as one is supposed to, but the car heading from the driver’s left either did not stop at all or stopped way too briefly and then gunned through the intersection, in the driving rain, and side-swiped my 2020 Prius Anniversary Car.

I was and am very, very sad about this. It was one of only two that were even sold in Moline from this 2020 Special Edition. (I have owned about 6 Priuses going back to 2002, when they cost $20,050 and you got a $500 rebate from the government, along with 0% interest.) Moline got a white one and a red one; I bought the red one. We drove it less than 100 yards to the bottom of Kennedy Drive and John Deere Road, after picking it up, brand new, when an uninsured driver from Texas rear-ended me. Not a great beginning and now, not a great ending—if it is the ending, [which it well could be.]

My door frame was sprung.  I could just barely get in and/or out of the car. I’m pretty sure I incurred a broken rib (from the seat belt) upon impact, as it hurts to laugh, cough or hiccup. I think my side of the car does looks like it got hit harder. My husband, fortunately, was unhurt. We both feel very lucky that injury was avoided. But now what?

My 2020 Prius by the time we reached Austin

‘By trip’s end, more pieces of my poor car had given up the ghost. [This Thanksgiving trip is but one of many I can make, but most would be with air miles or using the daughter’s flight attendant perks.

I had an app on my phone that showed us that there were only 2 places one could stay in the small town. Someone called in the accident and three policemen appeared and took down data. (I was in search of a women’s rest room, so I missed most of the initial conversation with the kid who hit us—Jimmy Hawkins—or with the firemen and/or policemen. Two medics also came and took my blood pressure, which the technician said was better than his own.) While my chest hurt, it felt like a broken or bruised rib, not tachycardia or arrhythmia.

After I ran 150 yards to a Subway store with a bathroom (of paramount importance at that particular moment in time), we found the Holiday Inn Express 1.6 miles down the road and checked in. I think I was experiencing  PTSD, because it was only 7:30 p.m. but I was exhausted. It could be auto-immune hepatitis, which the liver people think I may have and which makes you tired. (I start CellCept soon).

I fell asleep (until 4:3o a.m.) and went back to sleep until 8 a.m., but we also contacted Triple AAA and someone was supposed to come help us out with our car situation in 90 minutes.

We waited for 2 hours and nobody showed up. We canceled the appointment and decided we would attempt to drive the damaged car farther. I do not recommend this and we hoped that we were invisible to highway patrol along the route, because the main reason for continuing, despite the risks, was so that we could vote tomorrow. I hope to be among those from northern states who are “purpling” up the state of Texas, in time. (After all, if we voted in Illinois, the state will go blue; if we vote in Texas, the state will go red. But more people are moving to Texas than are moving to Illinois, so...).

Ironically, the interior of the car seemed fine. The headlights were dubious, but the taillights worked fine and, although the dashboard was signaling all kinds of issues with various dashboard services (no cruise control; passenger door not able to be fully opened; etc.) the actual motor seemed to be okay, the radio worked, the tail lights and signals worked, as did the windshield wipers. It was primarily the headlights (and my door) that were not working well. My husband spent the night restlessly trying to figure out how we were going to get a rental car when we had been told the closest one was 50 miles away in Tulsa. And there was no way to get to Tulsa but to drive the injured vehicle there (which is why we should have left earlier for our voting trip down).  I, on the other hand, felt exhausted and passed out early, [which never happens.] I seriously don’t know if it was the dealing with this unexpected catastrophe, riding all day from St. Louis, or AIH, but I was totally out of it and remained so for about 12 hours.

On Monday (Nov. 4, today), my spouse got up at 7:00 a.m. (to call the AAA guy at 7:15 a.m.)  and we were on the road fairly quickly, once we had waited (and waited and waited) for the Triple AAA guy [who did not show up in 90 minutes, or 120 minutes.] Our kids suggested flights out of Tulsa, but we had beaucoup crap to get to Texas packed in our car, including a rather large painting I want to hang over the TV set. How would we deal with getting all of that stuff into a different car—if we could even get one in Tulsa, 50 miles away?

Bee Gone

BEE GONE, available on Amazon

We talked about our options. My Big Concern was getting down here to vote for Kamala Harris.  I am, after all, the author of “BEE GONE” (available on Amazon) and I really want to see DJT “BEE GONE.”

So, we decided to chance it. (Kids: Do NOT Try This At Home!)

First, we purchased zip ties and tied everything down on my poor red car that we could.

That didn’t keep the right front fender from beginning to become really wonky by the time we hit Waco. We pulled off and—somehow—my husband removed the front panel that had (previously) been zip tied and left it in the parking lot of a tractor supply store. (Apropos), We would have transported the fender to a dumpster if we could have put the piece of metal in our overcrowded car. We had to drive for 5 hours in my damaged 2020 Anniversary Edition Prius. Can it even be saved? Don’t know. Can’t tell you.

KAMALA: I HOPE YOU APPRECIATE THIS! We risked tickets and personal injury to get to the polls tomorrow.

I read that older women prefer Kamala 68% to 25% or some such and I believe it. I fought hard for women to have the right to decide about what happens to their own bodies, back in the 60s and 70s. I still have my ERA bracelet from the 70s. Watching it all disappear under this guy is not on my Top Ten list. We will NOT go back. It is time to give Agent Orange his walking papers.

I managed to read half of Steven King’s book “The Long Walk” during our drive down but we forgot to charge the e-reader and it gave up the ghost about the same time my front right fender did. We’ll finish it on the way home. I also was reading Bob Woodward’s “War” and a book entitled “Watchdogs.”

We prayed for invisibility when driving, as this is obviously not the kind of vehicle you want on the road in that condition. But I was NOT going to be denied the ability to vote DJT into oblivion. “BEE GONE.”

My thumb (right hand) after the fingernail got ripped off at the Austin airport

OUCH!

I just hope that my liver doctor, who saw me on July 26 when I had just had my right thumbnail ripped off at the airport (see photo), isn’t disappointed in my ability to follow her directions to me, which were, “Try not to hurt yourself before I see you again.”

I see her on November 7th for a fibrescan and now I have a rib that hurts when I cough, laugh or hiccup.

I just hope that’s all I have.

Wish me luck.

And vote for good over evil and hope over fear.

Ladies, it’s up to us to save democracy. I’m doing my part. Do yours!

 

“Luki & the Lights” Helps Foster Understanding of ALS

Luki the robot

Luki & the Lights robot Luki from the Oscar-eligible animated film

This ten and one-half minute short, “Luki and the Lights” came to my in-box.  I watched it while knowing that there would be no happy ending to this story. Here was the synopsis provided:”Toby Cochran’s LUKI & THE LIGHTS shares a charming and touching story of a robot named LUKi who is slowly starting to malfunction. But even with the struggles ahead, LUKi demonstrates unwavering resilience, painting a vivid portrait of what it means to truly live and the power to find light even in the darkest of times. This poignant animated short was made to raise awareness of ALS as well as to create a platform for children to understand what the disease is. It has qualified to be considered for the 2025 Oscars®.”

ALS ON FILM:

Sascha Groen and her husband, Anjo Snijders, were searching for a tool to help explain his recently-diagnosed terminal disease to their children. Director Toby Cochran is the founder and creative force behind Big Grin Productions. He has 20 years of animation and production expertise. Cochran’s roles span story artist, writer, and director and extends across various entertainment realms, including games, commercials, live-action, and animated series. His distinguished career includes collaborations with studios and companies such as Netflix, Marvel, Disney, ReelFX, Discovery Channel, Bill & Melinda Gates Foundation, Nestle, Lego Universe, and Kuku Studios.

THE SHORT FILM “LUKI & THE LIGHTS

The decision was made to have an active, charming upbeat robot named Luki shown being struck by ALS. Do robots get ALS? While I applaud the idea of helping children understand this horrible and debilitating disease, a robot is made by man and can be fixed by man. People are different from robots. Currently, the ability to “fix” a person who has ALS is beyond the reach of science.

This 10 and 1/2 minute short has won over 20 awards and claims the distinction of being “the first ever animated short film featuring the first-ever animated character to have ALS.” This sounds good until you stop and think that the “character” is not human, so it (he) could perhaps have been “fixed” by a trip back to the robot factory? Not the case with human beings.

 To date, the film has taken home twenty awards including the “Audience Award” at the Florida Film Festival, the “Audience Choice Award” at Indy Shorts International Film Festival and Siggraph Electronic Theater, the Children’s Audience Award at Animayo Gran Canaria, “Best Animated Short” at the Phoenix Film Festival, and the “FilmSlam Student Choice Award for Best Short” at Cleveland International Film Festival.

Producer Adrian Ochoa is an award-winning producer, prior to joining Big Grin, Adrian worked at Pixar Animation Studios, PlayStudios, and Penrose Studios. His credits include Toy Story 2, Monsters Inc., Finding Nemo, The Incredibles, Cars, Wall-E, Cars 2, Monsters University, Inside Out, and The Good Dinosaur. He also worked on various shorts including Cars Toons, live-action shorts, and the animated short Day and Night. He’s also produced over 45 mobile games, including three with Shaquille O’Neal and the award-winning VR animated short film Arden’s Wake.

Throughout the film, there is charming music, but there is no dialogue as such. More accurately, what we have as “dialogue” is mostly incomprehensible, just like the disease itself.

ALS PRIME DOCUMENTARY: “NO ORDINARY CAMPAIGN”

Back in 2022, Katie Couric produced an ALS documentary about the struggle of Brian Wallach, a worker in the Obama campaign who was a successful Chicago attorney at the time he was diagnosed with ALS.   Brian was only 37 years old and had just returned to home with a new child with his wife, Sandra Obrevaya. (They have two children.) Chris Burke, a friend who was a filmmaker, set out to make a film about Brian’s struggle as the couple are thrust into the medical system where they must advocate for themselves and, hopefully, for others.

By the time this film came out the “Ice Bucket Challenge” was 8 years in the rear view mirror (2014).  When diagnosed in 2017, Brian was given only 6 months to live. The couple chose to publicize Brian’s struggle to continue to survive by promoting a bill to fund research into this killer disease. He got some help from former President Barack Obama, who appears in the film. It was during Obama’s campaign in 2008 that Brian and Sandra had met while working to help elect our first Black president.

Normally, ALS kills you within 2 to 5 years. Brian has been fighting the good fight for the past 6 years. He is in the top 20% of survivors.  From their home in suburban Chicago, the couple has seen their efforts to pass “Act for ALS” turn into $100 million for research for the next 5 years.  Since Brian was diagnosed in 2017,and the law passed the Senate unanimously on December 16, 2021, is time running out on the additional funding to solve this huge problem?

If you are as sympathetic to this fight and for funding to continue as I am, you should follow up the 10 and 1/2 minute animated ALS short”Luki & The Lights” with the longer documentary. It is a Prime Video documentary entitled “For Love and Life: No Ordinary Campaign.”

 

My Excellent Adventures Between July 15th and August 15th, 2024

 

The offending tree.

My “weekly” vow for WeeklyWilson has now collapsed under the weight of a series of random events.

First, there was the tornado, an EF1 that hit our court street in East Moline, Illinois on Monday, July 15th.

My spouse had just made an ice cream run to Whitey’s in Moline, which was closing down because of the bad weather. He went to the Dairy Queen and secured 2 Blizzards and was just in time to enter our court as a huge tree went down, taking with it all the power to about 30 houses. It was 7:37 pm. We would not have power again until late Thursday, July 18th.

I went outside to take pictures of the 6 trucks that showed up to try to restore power to our court street (there were 8,000 people without power). The heat index was 106.

One truck broke and another had to be sent. Soon, six were there. Then the tree people managed to pull all of the wires out of the house 2 doors down while cutting up the large tree.

My neighbor, Norma, saw me outside and came outside to chat, which was a good idea until I passed out on her driveway because of the heat (see article about the Gold Coast Art Fair). She went to get my spouse (who was taking a nap and not fully dressed) and I struggled to my feet USING MY FRAIL KNEES, made it into our garage, and promptly passed out a second time.

The house, which had been without power since 7:37 p.m. on Monday night, was fairly hot, so I went to the basement and drank water and was fine  thereafter, except that we had no power and it was HOT inside our house. This was only Tuesday, July 16th.

Tuesday night we tried sleeping in the basement. The hide-a-bed in the basement is very old and it was very uncomfortable. It was also very difficult to get out of it and make it to the bathroom in the middle of the night, wielding only my trusty flashlight and winding my way through laundry baskets.

By Wednesday, July 17, we both agreed that we would seek out a motel.

In getting up from the driveway and the garage concrete as quickly as I could, to save face (if not knees),  I had done a number on my osteo-arthritic knees. We sought out a motel with a jacuzzi/hot tub and I spent the entire evening soaking my sore knees in the hot water while my spouse enjoyed having TV again.

So, that was the week of July 15th.

We then traveled to Chicago to celebrate my July 23rd birthday in style with dinner at the Firehouse,

On the 25th, Thursday, having bought a ticket to Texas so that I could be seen for elevated liver enzymes sooner than November 22nd  , I arrived 2 days after my birthday, and awaited pick-up by son Scott and the twins.

This is where things begin to go downhill, as I attempted to get a luggage cart and pilot error caused the thumb nail on my right hand to be ripped off by a machine in charge of renting the luggage carts.

I know. You’re saying, “How did THAT happen!?”

How, indeed.

That will be a story for another entry.

Suffice it to say that it has given me a newfound appreciation for all those movies where the bad guys torture someone by ripping off their fingernails.

Since the fingernail-ripping “Welcome to Austin” arrival, I found myself locked in the Buda Urgent Care (with 3 other patients) when 2 doctors could not get the locked front door open (they closed at 8 p.m and it was 9 p.m.on Friday night, July 26th) by the time Dr. McIntosh wrapped my injured finger in tape and tried to send me (us) on my (our) way.

Then, while picking up 2 wedge salads at the Buda Main Street Pizzeria, I got stuck in one of their two primitive rest rooms for 40 minutes.

Although I kicked the door and screamed HELP! a lot, nobody could hear me over the music. When I called, all I got was a recording. It was truly not what I needed right about then.

More details on the avulsion incident to follow

“Plastic People” At SXSW Describes A Harrowing Future

 

Ziya Tong.

Ziya Tong, one of the directors of Canada’s documentary “Plastic People.”

The Canadian documentary “Plastic People,” directed by Ben Addelman and Ziya Tong, had its World Premiere at SXSW on Saturday, March 9th, 2024. It is an absolutely terrifying piece of detective work, investigating how our fixation on plastic came to be and what plastic is doing to us. The synopsis said: “Plastic People is a landmark feature documentary that chronicles humanity’s fraught relationship with plastic and one woman’s mission to expose shocking new revelations about the impact of microplastics on human health.”

Directors of the Canadian documentary are Ben Addelman and Ziya Tong. Producers: Vanessa Dylyn, Stephen Paniccia.  Ben Addelman also wrote the screenplay.The film explores the origins of plastic (petroleum products) and suggests that, “Now we’re realizing that we made some big mistakes…We’re finding them wherever we look in the human body.”

Noting that 83% of tap water has plastic in it, the experts tell us, “We are slowly turning into plastic people.” Among other cheerily prophetic statements are these: “We are poisoning ourselves with our own hands. We are producing poisonous food.” And Christy Tyler, a PhD scientist says, “Every single person is exposed.”

BIG MONEY

Plastic People documentary at SXSW 2024.

“Plastic People” at SXSW 2024.

The income of makers of plastic is mind-boggling. With the efforts to curb the production of vehicles that use gas, the makers of plastic are looking at other ways to push up production and sales. One avenue was to support the single use of plastic, rather than recycling. Furthermore, says the film, the myth that some plastic can be recycled is pretty much that, since less than 10% of plastic, worldwide, gets recycled. (Forget the handy-dandy little recycle symbol.)

The film documents the following money made by big petroleum:

BASF – $65 billion

Exxon obil – $231 billion annual revenue

Dow Chemical – $48 billion

SABIC – $35 billion

Chevron Phillips – $3 billion

Plastic bottles used daily? 1.5 billion. Two million plastic bags are used every minute, amounting to 400 tons a year.

The film asks whether we want “to destroy the world to enrich a few?”

THE VERY BAD

plastic waste that is recyclable?

“Plastic People” at SXSW.

The entire message of the film is depressing. It doesn’t get any better when we see Dr. Celticki performing a brain operation and noting the presence of plastic that has crossed the blood-brain barrier. “If it can go to the brain, it can go everywhere,” he says. His message, “We are living in a synthetic world made mostly of plastic.”

Transferring all of this to an unborn generation means risking losing that entire generation. The effects of all of these chemicals on our bodies may not become clear for decades. What kinds of chemicals are we talking about?

Dibutylphthalate, Bisphonol A, Diethylnexyl phthalate, Decabro modiphenyl ether, hexabromo cyctodecane, perfluoralkyl and polyfluoralkyl nonyl phenol. All of them bad, of course.

All of these chemicals in our modern-day world have led to major increases in breast cancer, prostate cancer, and thyroid cancer. It is well-known that chronic inflammation is a precursor to serious illnesses. Fracking is another example of a very bad idea, health-wise.

In Portland, Texas a local resident talks about how the nearby Gulf Coast Growth Ventures Exxon Mobil plant spews pollution (1.6 tons of ethylene) and burns so brightly that you can come outside and read a newspaper at night.

PREVIOUS FILMS ABOUT POLLUTION

Plastic People documentary at SXSW.

“Plastic People” at SXSW.

Like the movie “Erin Brockovich,” Diane Wilson of San Antonio, who was defending the fishing industry, described taking on 10 chemical plants that were dumping 5 million gallons of toxic waste daily. (“Corporations do not have a conscience.”) She sued Formosa and won a $50 million-dollar settlement.  Her fight reminded me  of that waged against Teflon coating in frying pans by Mark Ruffalo’s character in the 2019 film “Dark Waters” or the 1998 John Travolta film “A Civil Action.”

RESOLUTIONS

Plastic People documentary

“Plastic People” documentary at SXSW 2024.

At film’s end, a Rwanda effort to curb single-use plastics is lauded, but its spokesperson says, “We need big countries to ban the use of single use plastic items.” The watchword is RESTRAIN and REDUCE (but nobody’s doing it).

CONCLUSION

This is not a “happy” film, but it is a necessary one. The scripted line, “Only when the problem becomes too big do we ask the questions” struck home. That sentiment also applies to climate change.  The weird weather anomalies that we are all experiencing now have come about because we have ignored a major problem for much too long.

One small bright spot was how the Philippines has done some clean-up of their extremely polluted shores. It followed right after the news that the big countries export their waste to the small countries, like the Philippines, something referred to as pollution colonialism. The prophetic word spoken to Dustin Hoffman in “The Graduate” (Plastics) has come back to haunt us Big Time.  What we are now seeing is described as “the embodiment of capitalism.”

After watching “Plastic People” I felt like I needed a drink, but straws are out now.

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